Talks & Movies

The Swedish patients' organization for Huntington's Disease, RHS (Riksförbundet Huntingtons sjukdom), arrange a yearly national meeting. Due to the covid-19 pandemic, the 2020 meeting was digital. The films below were made in September 2020. Published by courtesy of Riksförbundet Huntingtons Sjukdom. All films are in Swedish.

To view the Swedish subtitles, please click the third button from right in the control bar.

From RHS's national meeting in September 2020: Åsa Petersén on the latest international research and clinical trials and treatment.
Please note that there have been updates regarding the clinical trials described in this presentation since September 2020. 

From RHS's national meeting in September 2020: Sanaz Gabery talks about novel research on the brain’s electrical insulation system.

From RHS's national meeting in September 2020: A visit to our Huntington research lab.

Each year the Faculty of Medicine at Lund University, together with the health care organization Region Skåne and the Eric K. Fernström Foundation, organize the Research Day in Malmö and Lund. In 2019 the theme for the Research Day was mental illness, and Åsa Petersén was one of the scientific organizers.

See Åsa Petersén’s talk at the Research Day 2019:

When a gene causes mental illness - on YouTube (in Swedish only)

At the Research Day 2019, a film with Mathias and Birgitta Falk was presented. In the short movie they tell their story of how life with Huntington's disease can be. In Swedish only.

Movie about Huntington's disease - on YouTube

Åsa Petersén gave a talk about the latest HD research at the Swedish HD Patients' Organization, RHS, in Gothenburg in April 2018. In Swedish only.

Link to Åsa's talk: Research on Huntington's disease - on RHS:s website

In September 2018 the patients’ organizations in Ireland and Northern Ireland, arranged a joint conference in Ireland. In addition, they also held a skills development day for staff in the healthcare sector. Åsa Petersén gave lectures on Huntington’s disease, for both patients and staff. See her lectures by using the links below:

For patients: Research on non-motor aspects of Huntington disease - on YouTube

For staff: Huntington disease - on YouTube

Åsa Petersén's talk about HD and hypothalamic studies at the Research Day in 2010: HD and hypothalamic studies - on YouTube (in Swedish only)